Resource Center

Advocacy Group Directory

Resources for awareness, education, fundraising, and building communities

Show your support and get involved with these organizations. You can make a difference in the lives of people living with seizure clusters.

Clicking on certain links on this page will take you to sites outside of

Epilepsy Foundation of America

Advocacy organizations

Angel Wings Foundation The foundation’s vision is to create a new housing model that will service adults with epilepsy.

Epilepsy Advocacy and Employment Group (EPAEG) EPAEG provides employment assistance and support to those affected by epilepsy and seizure disorders.

The Sturge-Weber Foundation The Sturge-Weber Foundation provides education, resources, tools, research updates, and community news for people who experience seizures related to Sturge-Weber syndrome.

Danny Did Foundation The mission of the Danny Did Foundation is to prevent deaths caused by seizures through awareness, education, and outreach.

Lennox-Gastaut Syndrome (LGS) Foundation A nonprofit organization dedicated to providing information about LGS and raising funds for research, services, and programs for those affected by LGS.

Tuberous Sclerosis Alliance An organization dedicated to finding a cure for tuberous sclerosis complex while improving the lives of those affected.

Dravet Syndrome Foundation An organization dedicated to raising research funds for Dravet syndrome while assisting afflicted individuals and their families.

PCDH19 Alliance The mission of the PCDH19 Alliance is to improve the lives of children and families affected by PCDH19, raise funds to support research, and ultimately find a cure.

VA Epilepsy Centers of Excellence The Epilepsy Centers of Excellence work to ensure there is a national system of care available to all veterans with epilepsy that can help educate them about the impact of epilepsy on their lives.

The Anita Kaufmann Foundation The mission of the Anita Kaufmann Foundation is to change society’s attitude toward people with epilepsy and make the world epilepsy-friendly.

Other information sites

The Mayo Clinic The Mayo Clinic is a world leader in developing innovative ways to diagnose and treat epilepsy in children and adults.

National Association of Epilepsy Centers A resource to assist in finding a comprehensive epilepsy center near you.