Advocacy Group Directory
Resources for awareness, education, fundraising, and building communities
Show your support and get involved with these organizations. You can make a difference in the lives of people living with seizure clusters.
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Epilepsy Foundation of America
This is an excellent resource for reliable information about epilepsy, seizures, and treatments, as well as legal affairs and community services. The Epilepsy Foundation has affiliates in every state. Find your local group.
Connect with your regional Epilepsy Foundation chapter:
- Epilepsy Foundation of Minnesota
- Epilepsy Foundation of New Jersey
- Epilepsy Foundation of Florida
- Epilepsy Foundation of Arizona
- Epilepsy Foundation of Eastern Pennsylvania
- Epilepsy Foundation of Greater Los Angeles
- Epilepsy Foundation of Missouri & Kansas
- Epilepsy Foundation of Greater Chicago
- Epilepsy Foundation Heart of Wisconsin
- Epilepsy Foundation of Louisiana
- Epilepsy Foundation of Northeastern New York
Angel Wings Foundation The foundation’s vision is to create a new housing model that will service adults with epilepsy.
Epilepsy Advocacy and Employment Group (EPAEG) EPAEG provides employment assistance and support to those affected by epilepsy and seizure disorders.
The Sturge-Weber Foundation The Sturge-Weber Foundation provides education, resources, tools, research updates, and community news for people who experience seizures related to Sturge-Weber syndrome.
Danny Did Foundation The mission of the Danny Did Foundation is to prevent deaths caused by seizures through awareness, education, and outreach.
Lennox-Gastaut Syndrome (LGS) Foundation A nonprofit organization dedicated to providing information about LGS and raising funds for research, services, and programs for those affected by LGS.
Tuberous Sclerosis Alliance An organization dedicated to finding a cure for tuberous sclerosis complex while improving the lives of those affected.
Dravet Syndrome Foundation An organization dedicated to raising research funds for Dravet syndrome while assisting afflicted individuals and their families.
PCDH19 Alliance The mission of the PCDH19 Alliance is to improve the lives of children and families affected by PCDH19, raise funds to support research, and ultimately find a cure.
VA Epilepsy Centers of Excellence The Epilepsy Centers of Excellence work to ensure there is a national system of care available to all veterans with epilepsy that can help educate them about the impact of epilepsy on their lives.
The Anita Kaufmann Foundation The mission of the Anita Kaufmann Foundation is to change society’s attitude toward people with epilepsy and make the world epilepsy-friendly.