Angel Wings Foundation
Working to create homes for young adults with epilepsy
Like any parent of a child with a disability, Debbie Flader worries. Her adult daughter, Noel, has Rasmussen’s Encephalitis, a rare disease that causes uncontrolled, unpredictable and often severe epileptic seizures. Noel depends on a support system to assist her with activities of daily living and to keep her safe.
Yet Debbie believes that Noel, like any other young adult, deserves to live as independently as possible. Unfortunately, most of the residential placements in the family’s home state of Illinois have up to a 10 year wait list. For this reason, Debbie founded Angel Wings Foundation, an organization dedicated to creating housing specifically for adults with epilepsy, so they may live safely and independently within the community.
The Foundation is currently raising funds to purchase its first home, which it hopes to do within the next 12 to 18 months. Debbie envisions three to four adults living together with a support staff and an opportunity for residents to experience social, educational and vocational services. However, the program will require additional funds to pay for the brick and mortar along with services the adults with epilepsy will need. “We want to be sure that when we open the doors, we are creating a forever home, filled with love and allowing independence.”
The project has no state funding at this time, yet Debbie remains undaunted. With the support of corporate partnerships and individual donors, Debbie believes Angel Wings can raise the funds it needs to make its vision a reality. Indeed, the Foundation has already established corporate partnerships to join the cause, including Upsher-Smith Laboratories, Inc., the sponsor of Seizure Clusters ConnectTM. In 1998, Debbie co-founded Citizens United in Research (CURE), which today is the largest funder of epilepsy research outside of the government. She is determined to have the same impact with Angel Wings Foundation. In the meantime, inquiries continue to pour in from other families. Based on the high level of interest, the Foundation realizes that the need is there. Angel Wings will continue to seek donors, partners and fundraise to reach its goal of creating exceptional housing for adults with epilepsy.
To learn more about Angel Wings or to donate to its campaign, visit their website at AngelWingsFoundation.net.
May 31, 2016 | Categories: General