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Seizure Clusters: What’s in a Name?


Being able to describe what you’re experiencing may help you find the right help and support

Welcome to the blog. This is our very first blog entry, and we hope to add to our blog regularly, with topics of interest to you. We also have guest bloggers lined up for the coming months to share their insights, experiences, and knowledge!

Our Seizure Clusters Connect community has been growing by leaps and bounds. As of January 2015, we have over 21,800 likes on Facebook. Some of our members shared that they found Seizure Clusters Connect as they searched for information about seizures or seizure disorders. Others joined the community because they were encouraged by family and friends. And there are members who joined to meet, and learn from, people living with similar experiences.

To offer support to others—and, in turn, to feel supported and understood—helps our community stay connected! From our Facebook page, we have also learned that people value information sharing. This blog gives us another way to make that possible.

What our members want to know. On Facebook, you have asked us, “What are seizure clusters?” Many have never heard of the term seizure clusters before. People want to know what seizure clusters are, and how they are different from seizures that they may have experienced before.

Seizure clusters are described as seizures that happen one after the other. The seizures may occur over a short period of time. There is a recovery period between each seizure and a pattern that is different from the usual seizure pattern.

Researchers have explained that the difference in the seizure pattern may be seen, as “a measurable increase over the patient’s typical seizure frequency.” As an example, when seizures occur 3 or 4 times more often than your usual pattern, those episodes may be seizure clusters. Such a change should be discussed with your doctor, so that he or she can provide appropriate care. Read more about seizure clusters.

What’s in a name? When you understand the term seizure clusters—and use it—you may be able to:

  • Describe your seizures, symptoms, and experiences to your doctor more accurately
  • Find precise information or resources when you are searching online

No two people experience seizure clusters in exactly the same way. But now, by putting a name to the experience, people can understand and realize that they are not alone. There is knowledge and insight they can benefit from, and support they can count on.

Till our next blog entry—be well and take care.

January 27, 2015 | Categories: General

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